Dravet syndrome and marijuana

[Dingo]

http://kdvr.com/2013/06/11/medicinal-marijuana-reduces-seizures-for-6-year-old-girl-improves-quality-of-life/

There is a link at the bottom of the page to the original Gazette article, which is awe inspiring. Synopsis: 6 year old girl with 1200 seizures a month, maxed out on meds, literally dying from the side effects. Mom uses a low-THC content strain extract, now girl is having only THREE seizures in a month, with no side fx from the pot.

Near to my heart, because I have a close friend with a daughter her age, also suffering the same way from Dravett's. Sent him the article.

[rondog]

Sad that little kids have to suffer through bullshit like that and all the other diseases that inflict them, not to even mention other abuse. Kids should be immune from misery.

[BushMasterBoy]

eff big pharma and their lackey the .gov

[MarkCO]

So what? While I feel for her and I realize it does appear to improve her life, that still does not make me change my mind that anybody who wants to get high on pot should be able to. Heck, Heroine was developed and used to treat dying soldiers...I am fine with that, but not for anyone to prescribe for themselves. It is the self-diagnosis and people out there that think marijuana legalization will solve many problems that I have an issue with. The government and yes, most drug companies being hamstrung by FDA regulations are a better target to focus the effort on. You think it is bad now, wait until ObummerCare is fully implemented...

I worked for a drug company. The biotech pharmaceutical that was in trials saved lives. I have NO doubt that the illogical and ridiculous FDA regulations have resulted in over a million deaths in the US as a result of the drug not being approved. A drug you could drink a liter of and get not much more than bad gas.

[WETWRKS]

If pot has medical uses it MUST be handled thru doctors and pharmacies. What is set up now is a farse and was established for no other reason than to be a stepping stone for the legalization of pot for all.

[Ronin13]

So what? While I feel for her and I realize it does appear to improve her life, that still does not make me change my mind that anybody who wants to get high on pot should be able to. Heck, Heroine was developed and used to treat dying soldiers...I am fine with that, but not for anyone to prescribe for themselves. It is the self-diagnosis and people out there that think marijuana legalization will solve many problems that I have an issue with. The government and yes, most drug companies being hamstrung by FDA regulations are a better target to focus the effort on. You think it is bad now, wait until ObummerCare is fully implemented...

I worked for a drug company. The biotech pharmaceutical that was in trials saved lives. I have NO doubt that the illogical and ridiculous FDA regulations have resulted in over a million deaths in the US as a result of the drug not being approved. A drug you could drink a liter of and get not much more than bad gas.
Pot as a medicine, I agree with, but with how lax and easy it was to get a scrip for it prior to 64... that was a big joke. I could have walked into one of these quack dr offices and said "I had surgery in 2010, I feel pain still, can I get high?" No questions asked, they would have provided it. I'll bet 90% of those MMJ card holders in CO were not legitimate, it was just a BS excuse to get stoned, and sadly this detracts from the legitimacy of those who actually do have debilitating conditions that MJ has been proven to help.

[Dingo]

Didn't really intend it as a pro/vs pot thread, but oh well.

Pot should be legalized across the board with the same age/driving restrictions as alcohol. Unless you want to ban alcohol too, but we saw how well that worked. I agree with Ronin on the medical thing being a farce. People have, do, and will smoke it regardless of the laws. Let's not pretend it's medical only anymore, and just admit people like to get high. The pretense is stupid.

But I also think one should be able to buy a cartload of heroin and belt-fed machine guns at the counter in Walmart too. And reap capital consequences if their actions injure anyone else. On their own time, affecting them only, I say legalize EVERYTHING, and allow Darwin to have his say in our gene pool again.

But I'm just a tinfoiled Libertarian.... never mind me. :-)

[Jer]

Didn't really intend it as a pro/vs pot thread, but oh well.

Pot should be legalized across the board with the same age/driving restrictions as alcohol. Unless you want to ban alcohol too, but we saw how well that worked. I agree with Ronin on the medical thing being a farce. People have, do, and will smoke it regardless of the laws. Let's not pretend it's medical only anymore, and just admit people like to get high. The pretense is stupid.

But I also think one should be able to buy a cartload of heroin and belt-fed machine guns at the counter in Walmart too. And reap capital consequences if their actions injure anyone else. On their own time, affecting them only, I say legalize EVERYTHING, and allow Darwin to have his say in our gene pool again.

But I'm just a tinfoiled Libertarian.... never mind me. :-)

This. It will be brutal the first few years and lots of innocent and otherwise good people may die as a result but the long-term benefits of a gene pool cleansing will put us back in a commanding lead as a nation. Too many generations of creating laws to protect idiots from themselves has got us to the point were are now at. Pot is legal and I choose not to smoke it. Drinking bleach is legal and I also choose not to do that. I would guess that not having common sense or average intelligence would make such decisions difficult and I would want some large entity to care for me as an adult when I should be able to care for myself would be desirable. It's just too bad the majority of our nation now fits this mold and liberties and freedoms have to be sacrificed as a result.

[Ronin13]

Didn't really intend it as a pro/vs pot thread, but oh well.

Pot should be legalized across the board with the same age/driving restrictions as alcohol. Unless you want to ban alcohol too, but we saw how well that worked. I agree with Ronin on the medical thing being a farce. People have, do, and will smoke it regardless of the laws. Let's not pretend it's medical only anymore, and just admit people like to get high. The pretense is stupid.

But I also think one should be able to buy a cartload of heroin and belt-fed machine guns at the counter in Walmart too. And reap capital consequences if their actions injure anyone else. On their own time, affecting them only, I say legalize EVERYTHING, and allow Darwin to have his say in our gene pool again.

But I'm just a tinfoiled Libertarian.... never mind me. :-)
And think, all that money wasted on the "drug war" that could go to treatment and addiction counseling instead.

[davsel]

+1
Smoke 'em if you got 'em.
Drugs and guns for everyone.

[Jer]

And think, all that money wasted on the "drug war" that could go to treatment and addiction counseling instead.

Not to mention that crime that was created and how many US dollars have funneled to the Colombian and Mexican drug cartels over the years (and still going at record pace). If these items were legal and the cost associated was the cost of components, creation and whatever profit the market bared there would be no money for drug cartels continents away. Save the punishment & subsequent prisons for the criminals.

[Dingo]

This. It will be brutal the first few years and lots of innocent and otherwise good people may die as a result but the long-term benefits of a gene pool cleansing will put us back in a commanding lead as a nation. Too many generations of creating laws to protect idiots from themselves has got us to the point were are now at. Pot is legal and I choose not to smoke it. Drinking bleach is legal and I also choose not to do that. I would guess that not having common sense or average intelligence would make such decisions difficult and I would want some large entity to care for me as an adult when I should be able to care for myself would be desirable. It's just too bad the majority of our nation now fits this mold and liberties and freedoms have to be sacrificed as a result.

We are on the same page, my friend.

[ANADRILL]

Y'all aint smoking that weed in here are ye?

[Jer]

Y'all aint smoking that weed in here are ye?

Nice avatar.

[brokenscout]

Should be legal all the way around

[wctriumph]

As a medicine Pot does work wonders when applied properly. It has literally saved my wife's life and Fuck You if say different, you don't know what you are talking about.

[Ronin13]

As a medicine Pot does work wonders when applied properly. It has literally saved my wife's life and Fuck You if say different, you don't know what you are talking about.
THIS! My good friend that I grew up with has been battling cancer for about 3 years now... she feels like shit pretty much 22-23 hours a day (that other hour or two is when she can actually sleep), she doesn't eat, she gets these fits where she can't stop vomiting, and then along came marijuana. Boom, about 60% of her cancer treatment related problems were gone IMMEDIATELY. The rest gradually went away until it was about as good as it could get with hardcore radiation treatment. No more nausea, no more loss of appetite, and the pain was substantially less. Besides her daughter, she had no other reason to live before she had a completely different doc recommend pot. I would say it saved her life, and it's a medicine that works. Fuck the FDA, DEA, and congress for putting it down as a Schedule I narcotic (meaning "No medical benefits/use"), they also, in doing that, make it seem like it is as bad as cocaine and heroin.

[Dingo]

THIS! My good friend that I grew up with has been battling cancer for about 3 years now... she feels like shit pretty much 22-23 hours a day (that other hour or two is when she can actually sleep), she doesn't eat, she gets these fits where she can't stop vomiting, and then along came marijuana. Boom, about 60% of her cancer treatment related problems were gone IMMEDIATELY. The rest gradually went away until it was about as good as it could get with hardcore radiation treatment. No more nausea, no more loss of appetite, and the pain was substantially less. Besides her daughter, she had no other reason to live before she had a completely different doc recommend pot. I would say it saved her life, and it's a medicine that works. Fuck the FDA, DEA, and congress for putting it down as a Schedule I narcotic (meaning "No medical benefits/use"), they also, in doing that, make it seem like it is as bad as cocaine and heroin.

Yup. It goes back decades to hemp production and textile rivalries. Plus the DEA would lose too many jobs and tax allocation. Not to mention an entire industry that the govt couldn't tax, and Big Pharma would be in immediate competition with for many of their flagship drugs.

[Dingo]

I don't even like weed, but I think it's an amazing resource.

[Roger Ronas]

As a Stage IV renal patent, I can state that Marijuana does save lives. I have held off Dialysis for 7 (yes 7) years because of it. My Drs are amazed at how I'm still hanging on. Ex also has MS and it helps her tremendously too.
Grew up very anti, but when I met Dr Bob Melamede, and he explained that my vision loss could have been prevented had I been using MMJ, and the results I see now, I'll never stop using it.

Roger

[Cylinder Head]

i cant believe we as Americans are still having this conversation.
I am as straight laced as they come. I have been as far to the right as you can get. I have never seen an illegal drug let alone used any. I barely have ever drank in my life. I have never smoked, chewed etc. (or go with girls who do).

BUT, my eyes have been opened to the fact that freedom and liberty can be lost. And lost by sticking our noses in everyones business, by legislating morality, by legislating away things that we dont like or agree with. Freedom means making choices for yourself. As long as your choices dont negatively impact others, there should not be a law against it. We need less laws. We need more freedom. Just because you are super religious doesnt mean you can take away somebody elses choices. If we keep legislating away everything that we dont agree with, eventually we wont have any freedom. The conservatives will legislate away everything they want to go away, the liberals will legislate away everything else. There will be nothing left for us Freedom loving People to do. Everything will be illegal.

Its sad that there are some amongst us who still think they have the right to push their beliefs on everyone else.

holy fuck yes x 1,000,000,000. Nannies here who want to stick it to potheads are as bad as liberals sticking it to gun owners.

[Jer]

THIS! My good friend that I grew up with has been battling cancer for about 3 years now... she feels like shit pretty much 22-23 hours a day (that other hour or two is when she can actually sleep), she doesn't eat, she gets these fits where she can't stop vomiting, and then along came marijuana. Boom, about 60% of her cancer treatment related problems were gone IMMEDIATELY. The rest gradually went away until it was about as good as it could get with hardcore radiation treatment. No more nausea, no more loss of appetite, and the pain was substantially less. Besides her daughter, she had no other reason to live before she had a completely different doc recommend pot. I would say it saved her life, and it's a medicine that works. Fuck the FDA, DEA, and congress for putting it down as a Schedule I narcotic (meaning "No medical benefits/use"), they also, in doing that, make it seem like it is as bad as cocaine and heroin.

While I agree with what you say regarding this drug I would argue that we need to legalize ALL drugs. For starters, who is the government to decide what should be considered medically beneficial or not? I would argue that if someone is terminal and is in pain or wants to escape the reality of their life who are we to say they can't do heroine or meth? Sure, you or I may not see how it could possibly benefit someone and may not use it ourselves but we live in the USA man. If you can't get high here where can you get high? Lastly, making one substance illegal means that people will find other means to get high so what's the point? I actually overheard a conversation that other day where someone was absolutely livid because you could still buy bath salts in stores. Yeah, no shit. You can buy bleach and rat poison too... doesn't mean you should ingest it in any form idiots. No reason we should ALL have to suffer because a few can't handle their crack. In the end, the war on drugs is a lost cause and we're all worse off for it.